Rhabdoid cancer is so rare that most doctors in the UK may never see a single case in their entire career. It mainly affects babies and toddlers.
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Alex Able who’s 30 was diagnosed last year. It’s thought he might be the only adult in the country with Rhabdoid Cancer.
How do you navigate a disease where there are such few people?
And what do you do when the NHS decides to stop treatment?
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