Families fight for life-extending Muscular Dystrophy drug

When it was approved last year it was heralded as a breakthrough treatment in the fight against a rare and incurable muscle wasting disease. Givinostat slows the progression of Duchenne Muscular Dystrophy, a genetic condition which mainly affects young boys.

The drug was offered to hospital trusts for free under an early access programme. But to the dismay of parents, many trusts in England are refusing to make it available on cost grounds.

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