Every month in the UK, four babies are born with spinal muscular atrophy – SMA – a rare but debilitating genetic condition.
If left undiagnosed and untreated, many children with the most common form of SMA do not live beyond their second birthday. Despite this, the condition is not included in the newborn national screening programme – the heel prick test.
Our health and social care editor Victoria Macdonald speaks to one family whose son wasn’t diagnosed until he was four months old.
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