{"id":313908,"date":"2026-01-30T12:00:30","date_gmt":"2026-01-30T12:00:30","guid":{"rendered":"https:\/\/www.newsisc.com\/videos\/the-mnd-drug-postcode-lottery\/"},"modified":"2026-01-30T12:00:30","modified_gmt":"2026-01-30T12:00:30","slug":"the-mnd-drug-postcode-lottery","status":"publish","type":"post","link":"https:\/\/www.newsisc.com\/videos\/the-mnd-drug-postcode-lottery\/","title":{"rendered":"The MND drug postcode lottery"},"content":{"rendered":"<p><img decoding=\"async\" src=\"https:\/\/i3.ytimg.com\/vi\/fP7MBw27Ti4\/hqdefault.jpg\" alt=\"The MND drug postcode lottery\"><br \/> <iframe loading=\"lazy\" width=\"560\" height=\"315\" src=\"https:\/\/www.youtube.com\/embed\/fP7MBw27Ti4\" frameborder=\"0\" allowfullscreen><\/iframe> <\/p>\n<p>Read more of Faye&#8217;s report here: https:\/\/news.sky.com\/story\/postcode-lottery-means-groundbreaking-mnd-drug-is-a-lifeline-for-some-but-mental-torture-for-others-13500695<\/p>\n<p>Eleanor Dalley and Lillia Jakeman both have motor neurone disease, but only one has been granted access to a breakthrough treatment that can halt its symptoms.<\/p>\n<p>Tofersen is the first effective treatment for MND symptoms. Eleanor was able to get it through an early access programme ran by its manufacturer Biogen, which is currently offering it to the NHS for free.<\/p>\n<p>However, it requires regular spinal injections, and while the drug itself is free, some NHS trusts say they don&#8217;t have the staff or resources to administer it.<\/p>\n<p>These issues have resulted in a postcode lottery for access, with people like 19-year-old Lillia Jakeman losing out.<\/p>\n<p>SUBSCRIBE to our YouTube channel for more videos: http:\/\/www.youtube.com\/skynews<br \/>\nFollow us on Twitter: https:\/\/twitter.com\/skynews<br \/>\nLike us on Facebook: https:\/\/www.facebook.com\/skynews<br \/>\nFollow us on Instagram: https:\/\/www.instagram.com\/skynews<br \/>\nFollow us on TikTok: https:\/\/www.tiktok.com\/@skynews <\/p>\n<p>For more content go to http:\/\/news.sky.com and download our apps: Apple https:\/\/itunes.apple.com\/gb\/app\/sky-news\/id316391924?mt=8 Android https:\/\/play.google.com\/store\/apps\/details?id=com.bskyb.skynews.android&amp;hl=en_GB <\/p>\n<p>Sky News Daily podcast is available for free here: https:\/\/podfollow.com\/skynewsdaily\/ <\/p>\n<p>To enquire about licensing Sky News content, you can find more information here: https:\/\/news.sky.com\/info\/library-sales<\/p>\n","protected":false},"excerpt":{"rendered":"<p>Read more of Faye&#8217;s report here: https:\/\/news.sky.com\/story\/postcode-lottery-means-groundbreaking-mnd-drug-is-a-lifeline-for-some-but-mental-torture-for-others-13500695 Eleanor Dalley and Lillia Jakeman both have motor neurone disease, but only one has been granted access to a breakthrough treatment that can halt its symptoms. Tofersen is the first effective treatment for MND symptoms. Eleanor was able to get it through an early access programme ran by [&hellip;]<\/p>\n","protected":false},"author":1,"featured_media":313909,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"inline_featured_image":false,"footnotes":""},"categories":[128811],"tags":[149165,128934,135399],"actors":[],"class_list":["post-313908","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-sky-news","tag-fayes","tag-more","tag-read"],"yoast_head":"<!-- This site is optimized with the Yoast SEO plugin v27.3 - https:\/\/yoast.com\/product\/yoast-seo-wordpress\/ -->\n<title>The MND drug postcode lottery | News ISC Videos<\/title>\n<meta name=\"description\" content=\"Watch The MND drug postcode lottery for free, here on News ISC. 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