{"id":328385,"date":"2026-03-23T12:00:19","date_gmt":"2026-03-23T12:00:19","guid":{"rendered":"https:\/\/www.newsisc.com\/videos\/parents-race-to-save-two-year-old-with-childhood-dementia-itv-news\/"},"modified":"2026-03-23T12:00:19","modified_gmt":"2026-03-23T12:00:19","slug":"parents-race-to-save-two-year-old-with-childhood-dementia-itv-news","status":"publish","type":"post","link":"https:\/\/www.newsisc.com\/videos\/parents-race-to-save-two-year-old-with-childhood-dementia-itv-news\/","title":{"rendered":"Parents race to save two-year-old with childhood dementia | ITV News"},"content":{"rendered":"<p><img decoding=\"async\" src=\"https:\/\/i3.ytimg.com\/vi\/2B_mDtRi_gU\/hqdefault.jpg\" alt=\"Parents race to save two-year-old with childhood dementia | ITV News\"><br \/> <iframe loading=\"lazy\" width=\"560\" height=\"315\" src=\"https:\/\/www.youtube.com\/embed\/2B_mDtRi_gU\" frameborder=\"0\" allowfullscreen><\/iframe> <\/p>\n<p>Two-year-old Leni is described as \u201ca bundle of energy\u201d &#8211; a smiling toddler who loves to make people laugh.<\/p>\n<p>Every new word she learns and every developmental milestone she reaches, brings her family immense joy.<\/p>\n<p>But for her parents those moments are cruelly double-edged.<\/p>\n<p>Because Gus and Emily Forrester know in the coming years they could watch their daughter gradually lose all her physical and cognitive abilities.<\/p>\n<p>Leni has Sanfilippo disease, a rare genetic condition often described as childhood dementia.<\/p>\n<p>A clinical trial for a potential treatment is expected to begin in the United States later this year.<\/p>\n<p>Leni\u2019s parents are urging the government to help fund the research so the trial could also include patients in the UK.<\/p>\n<p>Her mother says early intervention is critical.<\/p>\n<p>\u201cEarly treatment is key for these children. The damage cannot be reversed once it\u2019s done,\u201d she said.<\/p>\n<p>\u201cIf she has to wait six months, that could mean she can no longer talk. If she waits 12 months, that could mean she loses the ability to walk.<\/p>\n<p>\u201cIt\u2019s extremely frustrating because the science is there. The data is there. It\u2019s proven to be effective, and yet we cannot access it.\u201d<\/p>\n<p>\u2022 Subscribe to ITV News on YouTube: http:\/\/bit.ly\/2lOHmNj<br \/>\n\u2022 Get breaking news and more stories at http:\/\/www.itv.com\/news<\/p>\n<p>Follow ITV News on TikTok https:\/\/www.tiktok.com\/@itvnews?lang=en<br \/>\nFollow ITV News on Instagram: https:\/\/www.instagram.com\/itvnews\/<br \/>\nFollow ITV News on Facebook: https:\/\/www.facebook.com\/itvnews\/<br \/>\nFollow ITV News on X: https:\/\/twitter.com\/itvnews<\/p>\n","protected":false},"excerpt":{"rendered":"<p>Two-year-old Leni is described as \u201ca bundle of energy\u201d &#8211; a smiling toddler who loves to make people laugh. Every new word she learns and every developmental milestone she reaches, brings her family immense joy. But for her parents those moments are cruelly double-edged. Because Gus and Emily Forrester know in the coming years they [&hellip;]<\/p>\n","protected":false},"author":1,"featured_media":328386,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"inline_featured_image":false,"footnotes":""},"categories":[128812],"tags":[129983,149928,138464],"actors":[],"class_list":["post-328385","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-itv-news","tag-described","tag-leni","tag-twoyearold"],"yoast_head":"<!-- This site is optimized with the Yoast SEO plugin v27.3 - https:\/\/yoast.com\/product\/yoast-seo-wordpress\/ -->\n<title>Parents race to save two-year-old with childhood dementia | ITV News | News ISC Videos<\/title>\n<meta name=\"description\" content=\"Watch Parents race to save two-year-old with childhood dementia | ITV News for free, here on News ISC. 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